billy blog archive - 2004-06

Monday November 25, 2024 06:40:51

Posted: April 22, 2006

The Federal Government at its finest!

Today I became aware of a case of a person in their late teens who is severely autistic, is stricken by life threatening epilepsy and has late onset Rett Syndrome. We learn that Rett syndrome "is a childhood neurodevelopmental disorder characterized by normal early development followed by loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, gait abnormalities, seizures, and mental retardation ... gradually, mental and physical symptoms appear ... loss of muscle tone ... [loss of] ... use of ... hands and the ability to speak ... The loss of functional use of the hands is followed by compulsive hand movements such as wringing and washing ... the inability to perform motor functions — is perhaps the most severely disabling feature of Rett syndrome, interfering with every body movement, including eye gaze and speech."

So this person cannot speak, cannot eat or wash without assistance, is not toilet trained and requires around the clock care and attention from family. She is also on disability support pension (DSP).

Yesterday, she received a letter from the Federal Government which said that because she is receiving DSP she is subject to the new welfare-to-work rules. The letter then said that according to these rules she is now required by law to look for work or face loss of entitlements.

This is a Government who deliberately runs Budget Surpluses such that those who are willing and able to work cannot find enough work because there are not enough jobs or hours of work created in the economy. And at the same time, the genii in FACS and DEWR dream up ever more pernicious ways to humiliate the most disadvantaged of our citizens, including those who are unable to work. So, the Australian Government at its finest.

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